This is just an update.
Over Mother’s Day I was thinking about how much older my mom was getting and how much older my father was getting since Father’s Day is right next month. My father is almost 70…My mother almost 60. I am only 24.
I was just sad, kind of. Almost upset. They had me in their 30’s and 40’s. They are 10 years apart.
I feel as if they will not see me finish college. I don’t know how to feel, but I feel a bit upset and really depressed about it.
I’ve been having hallucinations, voices, paranoia, and lots and lots of anxiety. I’ve been taking my medicine like clockwork. My xanax even more so.
I was doing well for a bit, and at first didn’t have time to write here the past week because my schedule was pretty busy. My schedule is still busy, but then I started really going downhill. I started having more episodes, and they have been becoming more severe.
I’m in denial, I think, that I am in relapse because I have been doing so well for so long. These past 2 months have been relapse, and the whole time when I was having mini episodes I was thinking, “Well, what if I relapse?”. Well I already am relapsing. Sure I was having mini episodes before 2 months ago, but it was far and few in between, and they didn’t get severe. Now the episodes are becoming more, and becoming severe. My paranoia is ramping up, my anxiety/panic attacks are very severe, my hallucinations are becoming more and more (which I don’t always have), and I become confused a lot more. My paranoia is something that I have a huge problem with as far as positive symptoms.
One example, I remember sitting on the couch watching the news yesterday and every person’s face and name that passed across the screen, I had sworn I knew them in real life, like outside of the news. I sworn I knew them and they have tried to kill me before in the past. I had vivid memories of them trying to kill me. Then a few minutes later I had no idea what I was watching. I didn’t know what the program was, even though it was still the news. My confusion just kicked in liked that; I became very confused. It wasn’t a memory issue. It became a confusion thing. I can say all that now, but I couldn’t then.
My psychiatrist quit and I am dealing with a new provider. Which has taken me off my anti-depressant. I was really upset. I’ve been on one my whole life until I got to this community clinic. Then I asked a year ago for one because I believed I needed one. Then this new provider took me off because she saw I was only on it for a year. I stopped taking it for a week because of side effects and I went in thinking I was going to be able to change it to something else (because of the side effects). I was just taken off.
I try to write when I have some clarity. I’ve been putting off updating the past three days so I can write with clarity.
I’m really nervous I will fail my courses in college because I am only halfway through. I just started back going to college, so this is not a good thing that is happening.
I’m really not sure how I will get through this.
My therapist said that after a month she will reevaluate giving me hour sessions, more sessions, and not having to have my parent come into the sessions with me. Right now I’m seeing a therapist 30 minutes a month, and I have to have my parent sit in all the sessions with me.
I’m happy, but that took so long. I’ve been seeing her for over 6 months now. Over half a year. Part of me doesn’t understand why I have to fight so hard for good therapy to the point where I have to consider changing therapists or clinics. Nothing is fair at this clinic. They take so much of my money. I thought it was because they were just too booked to get me in for hour sessions, and more sessions. That’s really not the case. I just think they don’t really care. I really don’t.
My psychosis has been getting worse over the past couple of weeks. I think I might be in denial, I don’t know. I keep saying I am having many mini episodes. In reality, I think I am just over the threshold into psychosis now and having bouts of “normalcy” every now and then. My episodes are just more and more, and times when I’m “Ok” is becoming less and less. I am having tons of voices, and my paranoia is ramped up so incredibly high. I get disorganized at times when the voices become overpowering. Maybe my anxiety worsening over the past few months was a sign, I am not even sure. I feel like I knew what the signs were, but either I forgot the signs or they seem to take a different pattern each time. I become confused a lot, even when I’m not hearing voices. I get confused and forget, a lot.
I’ve put a lot on my plate in the past few months; attending college again, getting out more. Actually that’s the main things I’ve been doing, but it’s extremely stressful, and I don’t think I might have taken the right approach to it, and may have done it too fast. I don’t know. I’m really confused about everything right now.
I am reluctant towards medicine. Even though I can get relief from some of them. I don’t want to be held down by side effects.
I don’t know if I can keep going like I am. I’ve been off Antipsychotics for a year, given that ive taken my Haldol a few times in between. I don’t think I have the strength to hold myself up through not taking them. Things go well off them for awhile, and after about a month or two things start to unravel a tiny bit here and there.
I’m actually confused. It’s night here.
Sitting here and hearing bits of sound outside my window and muffled voices from my walls, A/C unit, and thin air…I still am confused as to how sick I might be right now. I’m used to some of these sounds and voices, yet they still give me anxiety and instill fear.
I feel watched. Paranoid.
I feel like I’m on a mission.
one side of my side effects it that it depletes my ability to be creative and thats what i hold on to most in my life. is my creativity.
i miss my voices however bad they were now. they come back still. mostly when the injection is wearing off which should be soon.
i cant wait for that.
im quite lonely.
within every person with schizophrenia is a different person. we are all different.
also i dont buy into the fact the people with schizophrenia arent depressed. maybe not clinical and so bad to needing ECT. but this is such a lonely disorder. i refuse to say disease. i need hours upon hours of alone time. but to be alone for so many years is a different thing. i actually handled it well minus the psychosis for 4 years. idk whats differnt abut this year. maybe that my neighbor died. and it has me questioning life and the purpose of it. but this and last year have been the worst years of my life.
2008 was bad. but its like 2008 when i was almost homeless is like hitting me now i think because i didnt realize the impact money has until i got on disability last year. and now im on food stamps. who knows how long ill have all that too. i fear ill lose any at any review time.
i may not be a leper in my eyes but im another poverty statistic. another mentally ill poverty statistic. the kinda person sociologists report on in the news and articles online and how we need to help these people. but help never comes around. its all talk. and we are all stuck in the same place with money woes and mentally ill minds and loneliness and other health issues and other issues. well yea who wouldnt be depressed.
in 2007 when i was 16 i was for sure id be a film student at a top texas university mingling with very few people but at the near top envied with my creative visions. never a nobody on disability and food stamps. not a single soul known in my mind. my dad taking care of me. and a racked up number of police records and hospital stays. #1 member at club meds. in the top 5 at a least. everything turned to hell in prodromal symptoms in 2008 and a full blown psychotic episode that same year when i was borderline homeless. and every year of my life since then too. and it only gets worse. the symptoms. my life situation. the environment. etc.
dont tell me to not give up. ive given up already. dont give me that bullsh_t about trying harder or giving it time or how the meds will work it evenly out. now all i can think about is how to live minute by minute on these meds with still symptoms vying for my attention. talking to my voices alone and in public. and fearing what i know is real. dont tell me its not. because it is.
im alone in this and always will be. question is how can i NOT kill myself over that fact.